Gammaglobulin Infusions (IVIG)
Two treatments. The first treatment did not do much and I had a bad reaction to the second infusion. My body went into shock and rejected the treatment. Cost: $8,500 ea.
Interferon Injections
Two 30 day treatments. Four shots in the stomach for 30 days. There were no changes after these treatments. Interferon is a form of chemotherapy. Cost: $10,000 ea. Insurance does not cover this cost because it is a non-shelf usage. In other words, it's a form of treatments that is not commonly known for this virus. It's an out-of-pocket expense.
Liver Biopsy
A biopsy was taken of the liver and it was determined that Hepatitis A was discovered. However, it did not show up in my many batteries of bloodwork.
Acupuncture with Microcurrents
I tried three months of acupuncture all to no avail. I could feel channels opening up, but two hours after my sessions I suffered from severe headaches and the pain was worse than I started out with. My sessions would include 22-48 needles at a time.
MEDS: Morphine 60 mg 4x a day. Dilaudid 24 mg 4x a day. Tramadol HCL 100 mg 4x a day. Estazolam 1mg at night only. Nexium 20 1x a day. Vicadin max dosage as needed. Fentanyl Patch 100 mcg/hr. Oxycontin 80 mg 3x a day. Epivir (for immine system boost) 3x a day. B-12 injections 1 ml every other day. Many of these medications were taken as cocktails three times-a-day.
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A Devil in Desguise
About Me
- Robin said. . .
- I'm a 47 year old woman, mother, daughter and sister. I've been ill with my virus for over three years. I was always a healthy, energetic, active person. . .until I got sick with Coxsackie B 3 Virus. Since the initial infection, I've become bed-ridden almost daily (for weeks to months at a time), I cannot sit up without difficulty and I now walk with a cane. I have no energy level whatsoever. Physical exertion increases activity of this hidden virus, which increases my fever and causes extreme Chronic Fatigue Syndrome. There are days (many, many) where I wish I were no longer alive. I'd appreciate your input, comments, stories and/or any treatments that you may have tried.
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1 comment:
Good afternoon, I hope you are feeling well today. I did ask our team to review your blog. Based on the information you provided, we agree that you need access to a top infectious disease specialist, as well as a cardiologist, and then subsequent specialists to address secondary issues. PinnacleCare provides access to top specialists and facilities, as well as personal advocate to help you manage this difficult situation.
I am sure you have done the research, but to review, Coxsackievirus is an enterovirus, growing and multiplying in the gastrointestinal system, but can cause serious neurological issues, cardiovascular issues (including inflammation of the heart muscle), respiratory system, liver, etc. Cocksackievirus B can cause myocaditis as well, and judging by your weakness, this would be a possibility.
We would need to get you to a top infectious disease specialist who has expertise in Coxsackievirus and a cardiologist to assess your heart function. PinnacleCare would be a good choice for you since you likely need additional assessment, confirmation of your diagnosis, and treatment by specialists who are well versed in these issues.
--PinnacleCare--
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